15 Year old son with a syrinx
We got a call last night from my son's Dr and was told he has a syrinx. He has had severe back pain, headaches, and vomiting so she did an MRI. I did some research and it linked a syrinx to sm. We...
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I know this is my post but I talked to st judes and I was wrong they only treat children with cancer.
View ArticleRe: 15 Year old son with a syrinx
Hi -- one acm /sm specialist you may want to consider is Dr Barth Green at the Miami Instute to Cure Paralysis -- He is a member of the asap medical advisory board and does see Peds patients ect -...
View ArticleRe: 15 Year old son with a syrinx
I would appreciate any help i can get because I am totally in the dark here. He has not even seen a neuro yet. I have to call today and make an appointment but I had already decided to find a...
View ArticleRe: 15 Year old son with a syrinx
Dr Frim is in Chicago and is a CM specialist. his website is www.uchospitals.edu/physi...-frim.html Texas is closer and has some good specialists also. In fact, Dr Timothy George, a well known dr and...
View ArticleRe: 15 Year old son with a syrinx
You sound just like me when I first found out I had SM two years ago. I had never heard of it, and I had no idea what to do or expect.Before your son goes to see the NS, gather as much information as...
View ArticleRe: 15 Year old son with a syrinx
Nangie I wanted to add -- that you can go to the asap main website from the link at the top of this page ---and write the asap office to request a new member packet of info /articles ect from ASAP --...
View ArticleRe: 15 Year old son with a syrinx
We finally saw the Neurosurgeon but we had to be admitted to do it. His syrinx is about 4mm long and goes from C4 to T1. Right now because he is only having headaches, backaches and some vomiting he...
View ArticleRe: 15 Year old son with a syrinx
Symptoms that are worse in the morning- Does he wake up with a headache and vomiting? If so this is very suggestive of rasied intracranial hypertension. this is often associated with SM and Chiari....
View ArticleRe: 15 Year old son with a syrinx
I have talked to his ped and we are headed to New Orleans Children's hospital for a second opion. I have his mri and the radiologist report. I was able to see the syrinx on the film because they come...
View ArticleRe: 15 Year old son with a syrinx
No one can give me an answer as to why I have one either. I've been checked for everything from cancer to CM, and everything else looks okay, and I've never had any trauma to my back or trunk. I do...
View ArticleRe: 15 Year old son with a syrinx
We went to Children's Hospital in New Orleans for a second opinion and we were told again that because he is asymptomatic that we would just leave the syrinx alone for now and watch to see if it grows...
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